ࡱ>  %` GbjbjNN ,,>>$PL|ȱ<(ȳ޳޳޳UUU$h)F*bٵ|Ubb*޳޳?bBP޳޳bf% <p@޳ p]4  D$U0 4ojo@@oLUv˶TDcUUU**$^UUUbbbb$DO8jF8j  Emergency Preparedness Information For Hemodialysis Patients Table of Contents Introduction 2 Survival Instructions 3 Medical Alert 4 Emergency Information 5 Your Medical Condition and History 6 Medications 7 Hemodialysis Information 8 Preparing Your Emergency Pack 9 Supplies for Three Days Emergency 9 Substitution List 10 Emergency Diet Plan 11 Sample Emergency Diet Meal Plan 12 Water Disinfection 13 Radio Broadcasting During an Emergency 14 Renal Services Telephone and Fax Numbers15 Introduction Disasters often strike quickly, and without warning. In this manual, disaster is defined as a major event that directly affects care to you. People on dialysis are at risk because they need power and water for their treatment. These may not be available for several days if it is a big disaster. Telephones may not work. You may not be able to use roads and bridges, emergency rooms will be crowded, and hospitals will give first attention to people who are injured. For these reasons dialysis treatments may not be available. This booklet gives some ideas on how to handle the first several days until things can return to normal. Patients and families should study this booklet and make a plan. More information can be found in the Individual & Neighbourhood All-Hazard Emergency Preparedness Workbook from the BC Provincial Emergency Program.  HYPERLINK "http://www.pep.gov.bc.ca/hazard_preparedness/AllHazards_Web.pdf" www.pep.gov.bc.ca/hazard_preparedness/AllHazards_Web.pdf  HYPERLINK "http://www.getprepared.gc.ca" www.getprepared.gc.ca This site is available in English, French, Punjabi and Chinese. It is also available in Audio, Braille, Large Print and Diskette. Keep this booklet in your Kidney Foundation Manual and with your Emergency Supplies Survival Instructions Here are some simple instructions. 1. Stay at home, unless you are hurt. 2. Begin emergency diet plan. (See page 11) 3. Wait at home for instructions and details about hemodialysis on TV, radio, messenger or phone. (Find out your local emergency radio station) 4. If you must go to an emergency shelter, tell the person in charge about your special needs. 5. Patients must take as much responsibility as possible for getting where they have to go, keeping in contact with the unit and being available to come for dialysis at any time - day or night. You may have to stay at the dialysis centre if transportation is a problem. 6. You may have to be moved from your home. This may not be by ambulance or HandiDart but with military vehicles, volunteers, or by air. Bring your medications with you. See the section on Medications for more details. 7. Keep an extra pair of glasses with your emergency supplies. 8. Please notify your hemodialysis facility of address and telephone changes. Remember: Hemodialysis centres may not be able to give your regularly scheduled dialysis treatments. Medical Alert Why should you wear a medical alert? If you are injured or unable to talk, medical workers need to know quickly that you are a person on dialysis or a transplant recipient. How does it work? Your medical alert is worn as a bracelet or necklace and bears an international symbol. If needed, the computerized medical information you gave will be available in seconds to doctors and nurses...anywhere in the world. This important information will help medical personnel to give proper care...and could save your life. In a disaster, the phone lines may be down. However, the alert will tell the medical people that you are on dialysis. Helpful Tips: 1. A bracelet should be worn on the opposite side of your fistula. If it was on your access arm it could stop the blood flow and damage your fistula if it was pulled up your arm. 2. A necklace might be missed if your upper body clothes are rolled up. Usually your medical alert is custom engraved with your main medical conditions, personal ID number and a 24-hour hotline number. Medical Alert: Personal I.D. Number: ____________________________ 24 Hour Hot Line Number: ____________________________________ Emergency Information Should you require emergency medical attention, it is important that you provide this information to your caregivers. NOTE: A copy of this sheet should be with you at all times. Please print the information clearly, and update it if any of the information changes. Name: (last) (first) Date of Birth: Address: Phone: ________________________ email Address: Personal Health Number: Your nearest relative, or someone to be contacted in case of an emergency. Name: (last) (first) Relationship to you: Address: Phone: email Address: Out of Province contact (someone that everyone in the family can call for information): Name: Phone: email Address: ______________________________________ Your Medical Condition and History NOTE: A copy of this sheet should be with you at all times. If you need to go to another hospital or clinic in the event of a disaster, or if your records are unavailable or destroyed, this information will help any temporary care givers in understanding your special needs. You should update this annually and when treatment modalities change. Date Completed: Cause of Kidney Disease: Other Medical Problems: ___________________________________________________ Infectious Precautions: Allergies: Blood Type (if known): Usual Type of Treatment (check one): Hemodialysis Community Clinic Hemodialysis - Hospital Hemodialysis - Home Medications Know what medications you are taking, their names, strength, and how often you take them (for example: Tums 500 mg/one with each meal and at bedtime). Know which medications are absolutely necessary for your survival. Carry a list of medications (amount, frequency, names, strength) with you at all times. Keep a two-week emergency supply on hand at all times. Rotate the medication every 2-3 months, and check expiration dates. Take this with you if you are evacuated. If you travel, carry two or three days of supplies in your hand-carried baggage and dont let it out of your sight. In disasters, luggage always gets lost or misplaced. Suggestion: Keep the medication in a fanny pack that you can wear, not carry. That way, your hands are free. Periodically check this supply to make sure it hasnt expired. Also, if you use eye drops for eye conditions, include them in your emergency medicine supply. Medications/Dosage/Frequency: MedicationDosageFrequencyMedicationDosageFrequency Hemodialysis Information NOTE: A copy of this sheet should be with you at all times. Date Completed: I. The treatment centre where you usually get your care. Name of Centre: Address: Phone: Family Physicians Name: ___________________ Phone: _______________ Nephrologists Name: ______________________ Phone: _______________ Other Specialists Name: ____________________ Phone: _______________ Other Specialists Name: ____________________ Phone: _______________ Other Important Information and Telephone Numbers: II. Usual Dialysis Prescription: Dry Weight: _____________________________ Hemodialysis Treatment: Dialysis Hours: ____ Dialysis Treatments/Week: ____ Dialyzer: _______________________________________________________  Dialyzer Membrane Allergy: No Yes Type: __________________ Dialysate: Ca _____ K ____ Na _____ Gl ____ Bicarbonate _____  Freezing: Yes No Heparinization: Loading Dose: ________ Hourly Rate:: _______ u/hr Blood Flow Rate: _____________ mL/min III. Type of Vascular Access & Location: Central Line: ________ Graft: ________ Fistula:_______ Location: Left Right Arm Leg Blocking Agent: _______________________________________________ . Preparing Your Emergency Pack (Hemodialysis Patients) Keep a 3-day supply of foods and equipment for your Emergency Diet in a backpack that can be carried by one person. This way you will be able to quickly move to a shelter or to travel elsewhere for dialysis, if necessary. Check this pack every six months for expiry date and replace as needed. Select foods that you can replace regularly so that they will not get too old. You may not have electricity, water or cooking equipment, so plan meals that do not need to be cooked. Keep important equipment such as can openers and hand sanitizers in your backpack. Keep a copy of these guidelines with your 3-day food supply (in your pack) and at your work. Supplies for Three Days Survival (Hemodialysis Patients) Keep these supplies in your Emergency Diet pack. (check expiry dates every six months) Line the pack with a plastic garbage bag to keep it dry-an orange bag could also be used as an emergency signal. If you are diabetic: keep instant glucose tablets, sugar, hard candy, low potassium fruit juice or sugared pop on hand to treat low blood sugar. FOODS: 12 4 ounce (125 ml) cans of fruit (applesauce, pears, peaches, pineapple only) 1 Small box shredded wheat biscuits or puffed rice or puffed wheat 1 Box low salt crackers 1 Box low salt cookies 2 Bottles jelly, jam or honey 3 Bags hard candy (barley sugar, humbugs, peppermints, hard fruit candies) 3 85-213g cans of low salt tuna or salmon or 156g cans 33% less salt flaked chicken or turkey 1 Small jar of peanut butter (optional) 1 Container of Rice Dream or 100g package of skim milk powder or 1 can of evaporated milk. 1 2L bottle of water and/or water disinfection equipment (see page 13) - continued next page Supplies for Three Days Survival (Hemodialysis Patients) Keep these supplies in your Emergency Diet pack. (check expiry dates every six months) Line the pack with a plastic garbage bag to keep it dry-an orange bag could also be used as an emergency signal. EQUIPMENT: Can opener (small, hand operated) Sharp penknife Whistle Pair of scissors Waterproof matches and candles Flashlight (either battery operated or hand cranked) Radio (either battery operated or hand cranked) Batteries for flashlight and radio (with spares) Water purification tablets 1 Litre container for water purification Household bleach and eye dropper for water purification if desired (see page 13) Aluminum foil Container with lid Ziploc bags Plastic garbage bags orange bags can also be used as emergency signals Paper towels Disposable plates, bowls and plastic knives, forks and spoons Copy of this guide with completed up-to-date information Substitution List foods may be replaced if you have access to them: Food ItemsSubstitutions85-170g can tuna or salmon or 156g can 33% Less Salt Flaked Chicken or Turkey2-3 oz low salt meat, fish, poultry or 2 eggs5 unsalted crackers1 slice bread or 4 slices white melba toast or 2 graham wafers or cup plain rice or noodles  cup canned fruit cup fruit juice (apple, cranberry) and Small apple or cup fresh or frozen berries cup reconstituted evaporated milk or powdered skim milk cup fresh milk or cream Emergency Diet Plan (Hemodialysis Patients) If you are UNABLE to receive dialysis during a natural disaster or emergency, follow the Emergency Diet Plan. You will need to eat even less potassium, protein, phosphorus and fluid than usual. High levels of these in your body could be life threatening. Preparing ahead could SAVE YOUR LIFE. While planning for an emergency, follow these guidelines: Follow the Emergency Diet Meal Plan until dialysis is available again. Do not have more than 2 cups (500 ml or 16 oz) of fluid a day. You can chew gum or suck on hard candies to help with thirst. Do not use salt or salt substitutes. Use salt free foods when possible. Remember that foods lower in salt will make you less thirsty. Do not use high potassium foods such as potatoes, vegetables, bananas, oranges, melons, dried fruit and canned beans. Eat only the kind and amounts of fruits listed on the Emergency Diet Meal Plan. Eat less high protein foods such as meat, fish, poultry, eggs and peanut butter. If you have diabetes, use instant glucose tablets, sugar, hard candy, low potassium fruit juice or sugared pop to treat low blood sugar. Do not use high potassium fruit juice (eg. orange juice). If you are being evacuated and have time, add some butter or margarine to your pack for extra calories. Some emergencies (such as a snowstorm), allow you to stay in your home but you may not be able to get to dialysis for a while. You may be able to use fresh or frozen foods that you could have in place of some foods from your Emergency Diet Meal Plan (see Substitution List page 10). Use these foods first. If your power goes out, foods in your refrigerator will keep for 1 to 2 days if the door is only opened briefly. Use these foods first. Use disposable plates and utensils. Throw away after use. Sample Emergency Diet Meal Plan (Hemodialysis Patients) Breakfast 1cup cold cereal (puffed wheat, puffed rice or 2 shredded wheat biscuits) 1/2 cup (125ml) Rice Dream or cup milk prepared from dry milk powder or cup evaporated milk mixed with cup purified or distilled water. 5 low salt crackers + 2 Tbsp. jelly, jam or honey 1/2 cup canned fruit* (packed in juice), drink the juice and count it as part of your daily fluid intake Snack Hard candy Lunch 15 low salt crackers & 6 Tbsp jelly, jam or honey 1/2 cup canned fruit* (packed in juice), drink the juice and count it as part of your daily fluid intake Hard candy Snack 4 cookies 1/2 cup canned fruit* (packed in juice), drink the juice and count it as part of your daily fluid intake Dinner 1 can (85-170 grams) drained tuna or salmon (preferably low salt) Or 1 can (156 grams) 33% Less Salt Flaked Chicken or Turkey 15 low salt crackers & 4 tbsp. jelly, jam or honey 1/2 cup canned fruit* (packed in juice), drink the juice and count it as part of your daily fluid intake If you are hungry, you can have another 10 low salt crackers and 6 cookies each day. You could also have 2 tbsp. peanut butter. Repeat this meal plan until dialysis in available. See substitution list. (page 10) * For example: Applesauce, pears, peaches, pineapple Water Disinfection 1. Before disinfecting water, first let water sit for 30 minutes to allow dirt to sink to the bottom. Then pour the clear water through a clean cloth or handkerchief to remove any extra dirt or floating matter. 2. Water purification tablets. Use as directed. 3. OR you may boil water rapidly for 5 minutes. Because of chemicals in the water, swimming pool or spa water should not be used as a source of drinking water. In an emergency water may be disinfected with 5.25% sodium hypochlorite solution (household chlorine bleach). Do not use bleach that contains additives such as scent Use the following proportions: One eye dropper = 0.05 mL Clear Water: One litre 2 drops Four litres 8 drops Cloudy Water:One litre 4 drops Four litres 16 drops Mix water and bleach well by stirring or shaking in a container. Let stand for 30 minutes before using. There should be a slight bleach smell in the water. If not, repeat the dosage and let stand for an extra 15 minutes. Radio Broadcasting During a Disaster Listen to _______________(insert local emergency radio station) because they will pass on all emergency information if it is possible. RENAL SERVICES TELEPHONE AND FAX NUMBERS:     Providence Health Care Renal Services Disaster & Business Continuity Plan  PAGE 1 Providence Health Care Renal Services Disaster & Business Continuity Plan BDEK]^ ) . 5 P U V g n   ! 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