ࡱ> @ Tjbjbܡܡ N+lRRR82$V4T:(    ,d R        R R  fJJJhJJJ   |RRMj3 i{6@ @ Chapter objectives Euthanasia literally means 'good death' and generally aims to hasten the death of people who suffer severely without any hope of recovery. Objectives: 1. This chapter aims to show the development of policy in the Netherlands, which was the first country in the modern world to make euthanasia not a crime. 2. It also shows the conditions under which assisting the death of a terminally ill patient may be ethical, as many countries face this policy question. 12.1. What is euthanasia? Another word for euthanasia is mercy killing. Euthanasia has been a very controversial subject at periods over the past 3,000 years. One of the reasons for this is that some people regard it as a morally objectionable form of killing. In some forms of Buddhism, euthanasia is rejected because ending life is thought to be wrong. Many Christians oppose euthanasia because the Bible regards human life as sacred and as belonging to God. According to this view, euthanasia is wrong, as it is not up to humans to decide over life and death. But different people interpret their religious traditions in different ways. The act of euthanasia is today understood as termination of life on request. But it has not always been people's choice. The voluntary decision to terminate life has been misused during human history, especially between 1933 and 1945 during the German Nazi regime in Europe. This criminal regime murdered millions of people because they were disabled, ill, old, or of different ethnic group. Murders committed for these reasons were also called euthanasia. The Nazi regime excused their criminal deeds as termination of worthless lives. Such an excuse is against the humane nature of love and compassion. The crimes committed in the past are one of the reasons why euthanasia, also understood as termination of life on request, is a criminal act in almost all States of the world. The Netherlands has made euthanasia legal, though it is still controversial there, and in this chapter some of those debates will be used to explain euthanasia. Q1. Do acceptable forms of killing humans exist?  12.2. The legal development of euthanasia in the Netherlands Though the practice of euthanasia is much older, the Dutch euthanasia law has a history of legal development and contention since the 19th century. The euthanasia law in the Netherlands must be seen in its historical background of attempts at protecting physicians that act in the spirit of the law and in the interests of the patient. Before 1990, physicians risked prosecution, but then the Royal Dutch Medical Association and the Ministry of Justice agreed upon the procedure of notification. This meant that prosecution became unlikely if a physician followed the guidelines set out in the non-prosecution agreement between the physician and the patient. Q2. Where is the Netherlands? What religion do people there have? 12.3. The concept of euthanasia According to the authoritative 1991 study in the Remmelink report defines euthanasia in the Netherlands as follows: 'deliberately terminating the life of another person at his or her request'. It differs from other categories used in Dutch health care institutions: Assisted suicide is defined as 'deliberately assisting a person in a life-terminating act at his or her explicit request'. It is different from voluntary euthanasia as it does not support just any purpose in the act of self-destruction; A life-terminating act without an explicit request is defined as 'deliberately terminating the life of a person without his or her explicit request'. It is different from voluntary euthanasia in that it is not based on a well-considered, persistent and explicit request from the patient; Active euthanasia without an explicit request from the patient differs from voluntary euthanasia as it is not based on a well-considered, persistent and explicit request from the patient; 'Death resulting from the administration of opiates and other painkillers in large doses' is known as indirect euthanasia; and, 'Death resulting from the withholding or withdrawal of potentially life pro-longing treatment' is otherwise known as passive euthanasia or abstention. In the official definition, the termination of life at the request of the patient is central to the decision to terminate life in the case of voluntary euthanasia. The above definitions are similar to those used internationally in bioethics. 12.4. The decriminalisation of euthanasia In the Netherlands voluntary euthanasia has been decriminalised. The decriminalisation of euthanasia made the Netherlands the first country in the world to formally sanction "mercy killing". In the new law euthanasia is administered only to patients who are in a state of continuous, unbearable and incurable suffering. There are other requirements as well: A second opinion from an external physician; The patient must be judged to be of sound mind; and, A request to die must be made voluntarily, independently and persistently. The patient must be terminally ill with physical suffering. However, the physicians are not supposed to suggest it as an option. Both an oral and written request legitimise the physician to accede to the request. However, the physician is not obliged to do so. And he or she may only accede to the request while taking into account the due care-requirements mentioned in the bill. In each case the doctor must be convinced that the patient is facing interminable and unendurable suffering. If he or she believes that this is not so, the physician may not accede to the request for euthanasia, no matter what the declaration of will states. It is important to note that euthanasia and assisted suicide continue to be criminal offences, but are decriminalised in certain circumstances. The Dutch Penal Code (in Articles 293 and 294) now includes that provision. It stipulates that the termination of life on request and assistance with suicide are not treated as criminal offences when carried out by a physician and if criteria of due care are observed. Therefore the view that euthanasia and assisted suicide are no longer punishable does not reflect the substance of the bill correctly. Q3. What is the meaning of decriminalisation? Is euthanasia in the Netherlands legalised? Q4. Under what conditions is euthanasia practised in the Netherlands? Q5. What are the legal requirements? 12.5. Activity: Three Case-studies The following discussion of court cases illustrates the centrality of the meaning of the defence of necessity in the developments that led to the decriminalisation of euthanasia in certain cases. Read the three cases below and think of arguments for and against the view that the physician acted rightly Q6. How are the cases different from one another? Q7. Do you agree that 'defence of necessity' applies? The case of Geertruida Postma In 1971, Dr Geertruida Postma injected her mother with morphine and curare, resulting in the patient's death. On a number of occasions the patient had asked her daughter to end her life. She had suffered a brain haemorrhage after which she could hardly speak, hear, and sit up. Dr Postma was charged under Article 293 of the Dutch Penal Code. In 1973, the Leeuwarden criminal court found Dr Postma guilty but only ordered a one-week suspended sentence and one year's probation. The court indicated that the physician could administer pain-relieving drugs leading to the death of the patient in certain circumstances, provided the goal of treatment was the relief of physical or psychological pain arising from an incurable terminal illness. In this case, however, Dr Postma's primary goal was to cause the death of the patient. In the same year, the Royal Dutch Medical Association (KNMG) issued a statement supporting the retention of Article 293 but arguing that the administration of pain relieving drugs and the withholding or withdrawal or futile treatment could be justified even if death resulted. 2. The case of Mrs Schoonheim The 1984 Alkmaar ruling by the Dutch Supreme Court concerns Mrs Schoonheim, a 95-year old, bedridden patient, who had been unable to eat or drink and had temporarily lost consciousness shortly before her death. The patient requested euthanasia from her doctor, who consulted with another physician who agreed that the patient was unlikely to regain her health. The point here is that the patient was suffering from a chronic and not a terminal illness. The doctor in charge was convicted by a lower court and the Court of Appeals of an offence under Article 293 of the Dutch Penal Code, although no punishment was imposed. On appeal, the Supreme Court overturned the conviction, holding that the doctor was entitled to succeed in the defence of necessity under Article 40. The Court decided that the doctor had properly resolved the conflict of interests involved. 3. The Chabot case The so-called Chabot case led to a breakthrough in relation to the defence of necessity. A fifty-year old patient, Mrs Netty Boomsma, had a long history of depression, a violent marriage and her two sons had died, one by suicide and one of cancer. Her suffering was mainly psychological. Upon the death of the second son she decided to commit suicide and approached the Dutch Federation for Voluntary Euthanasia, who referred her to Dr Boudewijn Chabot. Dr Chabot diagnosed her as suffering from severe and intractable mental suffering. He consulted a number of his colleagues, though none of them examined Mrs Boomsma in person. In September 1991, Dr Chabot assisted Mrs Boomsma to commit suicide by prescribing a lethal dose of drugs. He reported her death to the public coroner. Dr Chabot was prosecuted under Article 294 of the Dutch Penal Code. He sought to invoke the defence of necessity. Importantly, the Supreme Court held that there was no reason in principle why the defence of necessity could not apply where the cause of a patient's suffering is psychological. However, the court held that for the defence to apply the patient must be examined by an independent medical expert. Dr Chabot had sought medical opinions from seven colleagues but none had actually seen Mrs Boomsma. Accordingly, the defence of necessity failed. In June 1994, Dr Chabot was found guilty of an offence under Article 294. The Supreme Court declined to impose a penalty, although in February 1995 Dr Chabot received a reprimand from a Medical Disciplinary Tribunal. 12.6. Social and political issues concerning euthanasia A wide range of critical views has been and still is expressed against euthanasia and assisted suicide. Euthanasia is applied only when we can speak of unbearable and hopeless suffering. Is a death wish voluntary under circumstances of unbearable and hopeless suffering? Some critics argue that instead of killing the patient, the patient should be made to feel better. Requests for euthanasia may be a result of depression and confusion, out of a feeling of worthlessness, or due to persuasion of interested parties with ulterior motives. Prompted by the Chabot case, a group of Dutch authors wrote a pamphlet named Scared to Death by Life. The authors argued that human freedom is regulated not only by rational thought, but also by emotions and unconscious motives. The authors doubt that the physician-patient relationship is always characterised by free and rational decision-making in end-of-life matters. One must take into account the patient's feelings of guilt, anger and inadequacy, and the possible motives of the physician, such as hunger for power, and rescue fantasies. Moreover, social determinants such as prevailing regulations, the public debate and the availability of palliative care in hospitals and homes for the elderly, also put to question the meaning of 'voluntary' in end-of-life decision-making. According to critics of euthanasia legislation, euthanasia and assisted suicide are not about giving rights to the person who dies but about changing public policy so that doctors or others can directly and intentionally end or participate in ending another person's life. Opponents fear that an increasingly lenient legal definition of mercy killing could make euthanasia a commonplace, and render it inappropriate to deny euthanasia to babies or the mentally incapacitated. The notion that the decriminalisation of euthanasia leads to more acts of life termination must be dealt with seriously. Examples of such practices include the administration of lethal drugs to shorten the life of persons unable to request it, and the assistance with suicide in the cases of psychiatric patients and elderly persons who currently are not suffering at all but who do not wish to continue living. This so-called slippery-slope effect is feared to lower the threshold at which human life is valued, and to make it easier for physicians and society at large to give up the life of the patient. This fear alone, it could be argued, even if not grounded on facts, may cause grave harm to the mental well being of the Dutch elderly and society as a whole. Nevertheless, the opposite argument, that an increased openness and awareness about euthanasia and practices of life-termination could give an enhanced sense of control-over-live to the fearful, would imply an increase in the sense of well-being of society as a whole. Q8. Should euthanasia and assisted suicide be regarded as a private or as a public matter? Q9. Do you think that the slippery-slope effect applies to the Netherlands? Would it apply in your country? Teaching Notes Please also see the related chapter 11 on "Truth-telling about terminal cancer" , but note the difference between hospice care and supporting people's choices to limit medical treatment at the end of life (passive), and active euthanasia which is largely the topic of this chapter. Many medical professionals today have taken the Hippocratic Oath (4th Century BC). The Hippocratic Oath includes prohibitions against active euthanasia and deals with the duties of the physician, such as confidentiality, resistance to injustice, and moral respect for each patient. However, euthanasia has a very long history. In fact, in the Stoic tradition (ca. 300 BC), active assistance with suicide of the physically or mentally impaired was allowed. The term euthanasia here referred to the ideal of a quick, gentle and honourable death. These Dutch guidelines are based on the criteria set out in court decisions relating to when a doctor can successfully invoke the defence of necessity. This form of defence is valid when a conflict of responsibilities occurs between preserving the patient's life on the one hand and alleviating suffering on the other. The conflict must be resolved on the basis of the doctor's responsible medical opinion measured by the prevailing standards of medical ethics. The euthanasia law is intended to respect the wish of the patient, thereby recognising the need for defining Patients' Rights. In 1994, 'Amendments under the Burial Act' incorporated the definition of patient's rights, making the Netherlands the first country in Europe to pass a law defining the responsibilities of doctors to their patients. Physicians must provide clear information, written down if requested, before they obtain consent for any operation. These developments are reflected in the court decisions made with regards to euthanasia since the 19th century. According to the Supreme Court in 1891, respect for human life has to be balanced against the loss of personal dignity, unbearable suffering and the impossibility to die in a dignified manner. The appeal to force majeure in a euthanasia case, therefore, was and still is recognised when a physician was confronted with a conflict of duties and acted in accordance with the medical-ethical demands of careful practice. This general exception is laid down virtually unchanged in the new law in a special justification for physicians. Critics say that euthanasia and assisted suicide are not private acts, but involve one person facilitating the death of another, and a human environment that shapes its conditions. In this view, euthanasia is a matter of public concern since it can lead to abuse, exploitation and erosion of care for the most vulnerable people in society. Respect for the person of the patient and concern for the family requires the optimal personal and public use of resources in end-of-life decisions that promote the value of humane life. On a personal level, a dying patient needs care. A patient is not merely a biological unit but a cultural being with a conscience, a social existence and family ties. On a public level, legal measures are taken to protect the rights of patients and physicians, and financial budgets are put together to provide the public with 'good treatment'. Criticism of the euthanasia law expresses uncertainty about the ways in which this 'good treatment' takes shape in society, especially in the long-term. One concrete step in the direction of dealing with the slippery-slope argument is the clarification of the complex conceptual apparatus adopted in official legal and health care institutions. According to the critics, a worrying entrance in the statistics is the category of 'intentional life-terminating acts without explicit request'. This entrance is regarded as a separate category and constituted approximately 0,7 per cent of all death in the Netherlands in 1995. These cases concern mostly patients who no longer can express their will, and suffer the last phase of a terminal disease such as cancer and neurological diseases. In the majority of cases morphine is administered, not only to relieve the patient from pain, but also with the purpose of hastening death. Though there is a relatively clear definition of euthanasia, there is a lack of a clear legal framework for these other occurring cases in which the patient does not have a clear say. Discussion Suggestions: Does decriminalisation of euthanasia have the same effect in wealthy countries as in poor countries? How important are different cultural and religious notions of death to the definition of euthanasia? Are the arguments for decriminalising euthanasia the same in a democracy as under a authoritarian regime? Online Resources: See papers on the Eubios Ethics Institute website, including News in Bioethics and Biotechnology < http://www.biol.tsukuba.ac.jp/~macer/NBB.html> Dutch Ministry of Foreign Affairs on euthanasia:  HYPERLINK http://www.minbuza.nl/english/homepage.asp http://www.minbuza.nl/english/homepage.asp. For web sites that oppose the legalisation and decriminalisation of euthanasia and assisted suicide, see  HYPERLINK http://www.epc.bc.ca/ http://www.epc.bc.ca/ (The web site of the Euthanasia Prevention Coalition) and  HYPERLINK http://www.prolifeinfo.org/euthanasia.html http://www.prolifeinfo.org/euthanasia.html, a radical opponent of euthanasia. Background literature on euthanasia and suicide in the Netherlands Griffith, John & Alex Bood & Heleen Weyers (1998) Euthanasia & Law in the Netherlands, Amsterdam: Amsterdam University Press. Hendin, H., C. Ruthenfrans, and Z. Zylics (1997) 'Physician-assisted suicide and euthanasia in the Netherlands' Journal of the American Medical Association 277: 1720-22. Keown, Damien (1995) 'Euthanasia in the Netherlands: sliding down the slippery slope?' in Keown (ed.) Euthanasia Examined. Ethical, Clinical and Legal Perspectives. Cambridge: Cambridge University Press. Kimsma G, Leeuwen (1993) E. Dutch Euthanasia: Background, Practice, and Present Justifications. Cambridge Quarterly of Healthcare Ethics. Shneidm, Edwin S. (1990) 'Preventing Suicide'. In John Donelly Suicide. Right or Wrong? Buffelo, New York: Promotheus Books Wijsbek, Henry (2001) Taking Lives Seriously. Philosophical Issues in the Dutch Euthanasia Debate, Amsterdam: Dissertation Vrije Universiteit Van der Maas, P.Jp., J.J.M. van Delden, L. Pijnenborg, C.W.N. Looman (1991) 'Euthanasia and other medical decisions concerning the end of life', Lancet 1991 (338): 669-674. 12. 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